So What Now? began with parents in mind. It is difficult to explain what it’s like raising unique children. Our kids are diagnosed with diseases, delays, disorders and labeled disabled. We don’t always agree. Some of us know our kids just do things a little differently and that disabilities are only relevant when the environment is disabling
Different isn’t always easy. At times, it feels impossible. Getting through the day is sometimes all we can think about.
Other times we feel like we have super powers and we dare anyone to challenge us.
In the beginning – lots of impossible days. Getting our kids what they needed was brutal for many of us. We were not taken seriously, not believed and often criticized for our parenting.
On top of that, public systems are incredibly difficult to understand. It seemed like we were asking the wrong question, the wrong person, the right question in the wrong way, the right person at the wrong time or the wrong person in the wrong way at the wrong time.

Did you . . . .
- Follow all the rules.
- Fill out all the forms.
- Answer all the questions no matter how many times the same questions were asked.
- Show up to every appointment on time.
- Try everything that was recommended, even when you knew it wouldn’t work.
- Wait patiently for your turn to talk.
- Get a different explanation every time you requested the same thing.
- Second guess yourself.
- Give up.
So What Now? What is left to do?
Contact Us!
We can help.
So What Now? is a Person Centered Organization. Our staff and board of directors are people who have been through what you are going through and we are here to help.
Services are completely confidential. We are not associated with any government agency and do not receive federal funding.
We do not turn people away for inability to pay or any “other” reasons. Most services are available at no cost. We offer a generous sliding fee scale available to all.
*Family is always defined as family of choice – meaning that family includes individuals who may not be connected by biology or marriage, but are bound together by shared experiences, care and commitment. For our purposes, family members are the people who have been actively involved in the child’s life and share responsibilities for the child’s healthcare.